Toolkits as participation infrastructure: a design-led systematic review of co-design workshops involving autistic people in technology development

Con el Núcleo de Accesibilidad e Inclusión PUCV, hemos publicado recientemente un artículo en el marco del proyecto Fondef ID24110202 “TEAsy Life: Modelo de IA para apoyar la autonomía de personas adultas con trastorno del espectro autista en el hogar”, donde observamos 34 publicaciones que describen procesos de codiseño con participación directa de personas autistas.

Este es el abstract del artículo:

This review examines how co-design practices engage autistic people in the creation of technologies, focusing on the methodological tools and infrastructures that enable participation. Although technological innovations for autism have multiplied, particularly in education, communication, and socialisation, many are still designed for autistic users rather than with them. Understanding how participation is scaffolded across design stages is crucial to advancing inclusive and neurodiversity-affirming design research. A systematic review of 34 peer-reviewed studies (2010–2025) revealed marked asymmetries in participation. Autistic people were most often involved in validation (64.9%), and in ideation (61.8%), where proxies such as caregivers or teachers frequently mediated input, but in less in prototyping (32.4%). Toolkits were most diverse during ideation, combining visual, tangible, and narrative supports; while prototyping and validation relied mainly on generic or standardised instruments. Four cross-cutting categories of participatory tools emerged: visual/tangible, narrative/structured, sensory/embodied, and technological/contextual. Current co-design practices remain uneven and child-focused, with limited cultural diversity. Advancing the field requires reconceptualising toolkits as participation infrastructures that accommodate multimodal communication and embodied expression. This approach can guide future design research towards more sustained, equitable, and neurodivergent-inclusive collaboration.

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